Speaker: Megan Doerr, MS, LGC (Prinicipal Scientist, Governance Sage Bioetworks)
Description of talk: Although most have moved beyond the use of "subject," participants are often still viewed as objects of information rather than partners in communication in the research ecosystem. App-mediated research studies are a natural opening for participant-centered research designs. At the same time, the promise of relatively facile and frequent data sampling makes app-mediated studies appealing to researchers but may introduce new risks for participants. How can we leverage the features of this novel system to maximize public benefit with participants and researchers sharing time "under the microscope?"